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  7. Exploring Data-Driven Advocacy in Home Healthcare Work

Exploring Data-Driven Advocacy in Home Healthcare Work

File(s)
Exploring data driven advocacy.pdf (4.76 MB)
Permanent Link(s)
https://hdl.handle.net/1813/121346
Collections
The Initiative on Home Care Work
ILR Conference Proceedings, Presentations, and Speeches
Author
Ming, Joy
Tolera, Hawi
Tu, Jiamin
Yitzhaki, Ella
Ngai, Chit Sum Eunice
Sterling, Madeline
Vashistha, Aditya
Avgar, Ariel
Dell, Nicola
Abstract

This paper explores opportunities and challenges for data-driven advocacy to support home care workers, an often overlooked group of low-wage, frontline health workers. First, we investigate what data to collect and how to collect it in ways that preserve privacy and avoid burdening workers. Second, we examine how workers and advocates could use collected data to strengthen individual and collective advocacy efforts. Our qualitative study with 11 workers and 15 advocates highlights tensions between workers' desires for individual and immediate benefits and advocates' preferences to prioritize more collective and long-term benefits. We also uncover discrepancies between participants' expectations for how data might transform advocacy and their on-the-ground experiences collecting and using real data. Finally, we discuss future directions for data-driven worker advocacy, including combining different kinds of data to ameliorate challenges, leveraging advocates as data stewards, and accounting for workers' and organizations' heterogeneous goals.

Date Issued
2025-27
Publisher
Association for Computing Machinery
Keywords
care work
•
policy advocacy
•
data privacy
•
technology burden
•
invisible labor
•
data justice
Related DOI
https://doi.org/10.1145/3706598.3713086
Previously Published as
Ming, J., Tolera, H., Tu, J., Yitzhaki, E., & Ngai, C. S. E., et. al. (2025). Exploring data-driven advocacy in home healthcare work. CHI Conference on Human Factors in Computing Systems, April 26-May 1, 2025, Yokohama, Japan.
Rights
Attribution-NonCommercial-NoDerivatives 4.0 International
Rights URI
https://creativecommons.org/licenses/by-nc-nd/4.0/
Type
conference papers and proceedings

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