Session 2b:  Confidentiality, Privacy, and the Ethics of Social Data

• Lecture Notes (powerpoint) (PDF)

• Assigned Readings
• Cornell’s University Committee on Human Subjects
• U.S. Code Title 13: http://www.law.cornell.edu/uscode/html/uscode13/usc_sup_01_13.html
  • Disclosure: http://www.law.cornell.edu/uscode/html/uscode13/usc_sec_13_00000214----000-.html
• U.S. Code Title 26: http://www.law.cornell.edu/uscode/html/uscode26/usc_sup_01_26.html
  • Disclosure: http://www.law.cornell.edu/uscode/html/uscode26/usc_sec_26_00007213----000-.html
• Privacy Act (1974): http://www.usdoj.gov/04foia/privstat.htm
• Confidential Information Protection and Statistical Efficiency Act (CIPSEA, 2002)
  • U.S. Code Title 44 (Chapter 35): http://www.law.cornell.edu/uscode/html/uscode44/usc_sup_01_44_10_35.html
• Assigned Tasks

• Background Readings and Materials
• Tuskegee Syphilis Study: http://www.gpc.edu/~shale/humanities/composition/assignments/experiment/tuskegee.html
• Eugenics: http://www.eugenicsarchive.org/eugenics/
• French Census 1941: Adler, K. H. Vichy Specificities: Repositioning the French Past, Contemporary European History, 9, 3 (2000), pp. 475-488 (available online at subscribing libraries).
• U.S. Census and Japanese Internment: Mayer, T. S. Census Bureau Research Report Series (Survey Methodology #2002-01) "Privacy and Confidentiality Research and the U.S. Census Bureau Recommendations Based on a Review of the Literature"
• Private Lives and Public Choices: http://www.nap.edu/books/0309047439/html/index.html